Mitochondrial website links
The Australian Mitochondrial Disease Foundation (AMDF)
The Australian Mitochondrial Disease Foundation (AMDF) will offer support to all sufferers of mitochondrial disorders. Its mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders, and to provide support to affected individuals and families.
Please follow the link below:
http://www.amdf.org.au/
The following search engine has been customised for Mitochondrial Searchs
Aussie F.O.L.K.S. The
Australian Landau Kleffner Association
www.angelfire.com/hi5/aussiefolks/
Australian Chapter of
the Batten Disease Support & Research Association
http://www.battens.org.au/
Australian Chrohn's and
Colitis Association (ACCA)
http://www.acca.net.au/
Australasian Genetic
Alliance (AGA) Secretariat
http://geneticsupportcouncil.org.au/
Australian Huntington's
Disease Association (NSW) Inc.
http://www.ahdansw.asn.au/
Australian
Leukodystrophy Support Group
http://avoca.vicnet.net.au~leuko/
Australian Primary
Immuno-Deficiency Association
http://www.apin.org.au/
Australasian Tuberous
Sclerosis Society Inc.
http://www.netspace/net.au/~atss
Birth Defect Research
for Children
http://www.birthdefects.org/
Canadian Directory of
Genetic Support Groups
http://www.lhsc.on.ca/programs/medgenet/
Cancer Council NSW
Hereditaryi
Cancer Registers
http://www.cancercouncil.com.au/editorial.asp?pageid=663
Cardo-facio-cutaneous
Syndromei
Association
http://www.cfcsyndrome.org/
Cardiomyopathy
Association of Australia Inc
http://www.cmaa.org.au/
Children's
Cardiomyopathy Foundation Inc
http://www.childrenscardiomyopathy.org/
Children's Craniofacial
Association
http://www.ccakids.com/
CMT Association of
Australia
www.e-bility.com/cmtaa
Chromosomei 18
Registry and Research Society (Aust) Inc.
http://www.chromosome18.org/
CLIMB
http://www.climb.org.uk/
Cochrane Cystic Fibrosis
& Genetic Disorders Group
http://www.liv.ac.uk/cfgd
www.nicsl.com.au/cochrane/index.asp
Commonwealth Carelink
http://www.commcarelink.health.gov.au/
Contact a Family
http://www.cafamily.org.uk/
http://www.makingcontact.org/
Cornelia de Lange
Syndromei
Australasia Assocaition
http://www.cdlsaus.org/
Craniosynostosis support
Group
http://www.caps2000.org/
Cri du Chat Syndromei
http://www.criduchat.asn.au/
Donor Conception Support
Group of Aust.
http://www.dcsg.org.au/
Dore Achievement Centres
http://www.dore.com.au/
FACES - The National
(USA) Craniofacial Association
http://www.faces-cranio.org/
Forward Face - The
Charity for Children with Craniofacial Conditions
http://www.forwardface.org/
The Australian
Craniofacial Unit
http://www.wch.sa.gov.au/acfu/
The Personal Side of
Craniofacial Differences
http://members.tripod.com/~Craniofacial/
John Hopkins Center for
Craniofacial Development & Disorders
http://www.hopkinsmedicine.org/craniofacial
FND-CFND - support group
for both Frontonasal dysplasia and Craniofrontonasal
dysplasis, at yahoo groups.
http://au.groups.yahoo.com/group/FND-CFND
Fabry Disease Support
Group
http://www.fabry.com.au/
Fragile X Association of
Australia Inc.
http://www.ozemail.com.au/~fragilex
Genetic Alliance
http://www.geneticalliance.org/
Genetic and Rare
Diseases (GARD) Information Centre at the National Institute of Health
- USA
http://rarediseases.info.nih.gov/html/resources/info_cntr.html
Genetic Interest Group
http://www.gig.org.uk/linktogig.htm
Genetic Support Council
of WA
http://geneticsupportcouncil.org.au/
Genetic Support Network
Victoria (GSNV)
http://www.gsnv.org.au/
Kidney Kids of NZ
Support Group Inc
http://www.kidneykids.org.nz/
Magic NZ
http://www.magicnz.org.nz/
Nail Patella Syndromei
Worldwide
http://www.nailpatella.org/
Neurofibromatosis
Association of Aust. Inc.
http://www.nfaa.org.au/
Marfan Support and
Information in NSW
http://www.marfan.net.au/
Marinesco-Sjogren
Syndromei
Support Group
http://www.marinescp-sjogren.org/
Meniere's Support Group
of NSW Inc.
www.hinet.net.au/~nswnsg
Metabolic Dietary
Disorders Association
http://www.mdda-australia.org/
Mucopolysaccharide &
Related Diseases Soc. Aust. Ltd.
http://www.mpssociety.org.au/
Muscular Dystrophy
Association of NSW Inc.
http://www.mdansw.org/
Nail Patella Syndromei
Worldwide
http://www.nailpatella.org/
National Organization
for Rare Disorders, Inc.
http://www.rarediseases.org/
National Association for
Pseudoxanthoma Elasticum
www.ucaqld.com.au/pxe
http://www.pxe.org/
National SIDS Council of
Australia Ltd.
http://www.sidsandkids.org/
Neurofibromatosis
Association of Australia Inc.
http://www.nfaa.org.au/
New Zealand Organisation
for Rare Disorders (NZORD)
http://www.nzord.org.nz/
Pallister-Hall
Foundation (Aust)
http://www.pallisterhall.com/
Parent to Parent (New
Zealand)
http://webnz.com/nzhealth/support/parent.html
Poland Syndromei
Support Association
http://groups.msn.com/Polandsyndromesupportwelcome
Polycystic Kidney
Disease Association
www.kidney.org.au/renalresources
Polycystic Ovary Syndromei
Association of Australia Inc.
http://www.posaa.asn.au/
Prader-Willi Syndromei
Assoc. of Australia
http://www.pws.org.au/
Retina Australia NSW
http://www.retinaaustralia.com.au/
Rett Syndromei
Association of NSW Inc
http://www.rett.nesher.com.au/
Self-Help Organisations
United Together (SHOUT)
http://www.shout.org.au/
Short Statured People of
Australia
http://www.nsw.sspa.asn.au/
Sjogren Syndromei New
Zealand
http://www.sjogrensnewzealand.co.nz/
Smith Magenis Syndromei
Support Group of Australia
http://www.smithmagenis.org/
South African Inherited
Disorders Association (SAIDA)
http://sunsite.wits.ac.za/saida
Spinal Muscular Atrophy
Association of Australia
http://smaaustralia.com/
Syndromes Without A Name
(SWAN)
http://members.optusnet.com.au/~swanaus
The Bath Syndromei
Foundation, Inc.
http://www.barthsyndrome.org/
The Haemochromatosis
Society of Australia
www.home.gil.com.au/~haemsoc/index.html
The Lupus Association of
NSW Inc
http://www.lupusnsw.org.au/
Your Genes, Your Health
http://vector.cshl.org/ygyh
Thalassaemia Society of
NSW
http://www.tsv.org.au/
The Centre for Geneticsi
Education
http://www.genetics.com.au/
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