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Mitochondrial website linksWe have found the following
website links to be
invaluable.
If you're new to Mitochondria try starting here: The "What is Mitochondria" page explains
the
basics,
it's a good place to start your research: United Mitochondrial Disease Foundation This is a very good American site dedicated to supporting Mitochondrial sufferers and their families. The Muscular Dystrophy (MDA) The Muscular Dystrophy website includes mitochondrial myopathy. There is practical information, including "help hints" for living with neuromuscular disease. There is a brochure for parents. You will also find information for assisting to further educate school personnel. MDA Facts about Mitochondrial myopathies Read this, it's short sharp and concise. The Association of Genetic Support Australasia http://www.agsa-geneticsupport.org.au/home A very good general reference site with loads of useful information and links MITOMAP: A human mitochondrial genome database This is a technical reference! Try reading more of the general papers first unless medically trained. Mitochondrial books and medical references can be found on Amazon.com, many at reasonable prices
General Mitochonrial and Genetic conditions Website LinksOther useful links:Mitochondrial Disorders Technical Information http://www.neuro.wustl.edu/neuromuscular/mitosyn.html Syndromes Without A Name (SWAN) http://members.optusnet.com.au/~swanaus Mitochondrial disease from a family with eight http://www.kathleensworld.com/mitochon.html The Muscular Dystrophy Association http://www.mdausa.org/ Autism Action PLAN If you know somebody with a child struggling with autism please refer them to this site http://www.autismactionplan.com.au Drug Free Attention Difficulties Support DNA from the beginning Aussie F.O.L.K.S. The
Australian Landau Kleffner Association Australian Chapter of
the Batten Disease Support & Research Association Australian Chrohn's and
Colitis Association (ACCA) Australasian Genetic
Alliance (AGA) Secretariat Australian Huntington's
Disease Association (NSW) Inc. Australian
Leukodystrophy Support Group Australian Primary
Immuno-Deficiency Association Australasian Tuberous
Sclerosis Society Inc. Birth Defect Research
for Children Canadian Directory of
Genetic Support Groups Cancer Council NSW
Hereditaryi
Cancer Registers Cardo-facio-cutaneous
Syndromei
Association Cardiomyopathy
Association of Australia Inc Children's
Cardiomyopathy Foundation Inc Children's Craniofacial
Association CMT Association of
Australia Chromosomei 18
Registry and Research Society (Aust) Inc. CLIMB Cochrane Cystic Fibrosis
& Genetic Disorders Group Commonwealth Carelink Contact a Family Cornelia de Lange
Syndromei
Australasia Assocaition Craniosynostosis support
Group Cri du Chat Syndromei Donor Conception Support
Group of Aust. Dore Achievement Centres FACES - The National
(USA) Craniofacial Association Forward Face - The
Charity for Children with Craniofacial Conditions The Australian
Craniofacial Unit The Personal Side of
Craniofacial Differences John Hopkins Center for
Craniofacial Development & Disorders FND-CFND - support group
for both Frontonasal dysplasia and Craniofrontonasal Fabry Disease Support
Group Fragile X Association of
Australia Inc. Genetic Alliance Genetic and Rare
Diseases (GARD) Information Centre at the National Institute of Health
- USA Genetic Interest Group Genetic Support Council
of WA Genetic Support Network
Victoria (GSNV) Kidney Kids of NZ
Support Group Inc Magic NZ Nail Patella Syndromei
Worldwide Neurofibromatosis
Association of Aust. Inc. Marfan Support and
Information in NSW Marinesco-Sjogren
Syndromei
Support Group Meniere's Support Group
of NSW Inc. Metabolic Dietary
Disorders Association Mucopolysaccharide &
Related Diseases Soc. Aust. Ltd. Muscular Dystrophy
Association of NSW Inc. Nail Patella Syndromei
Worldwide National Organization
for Rare Disorders, Inc. National Association for
Pseudoxanthoma Elasticum National SIDS Council of
Australia Ltd. Neurofibromatosis
Association of Australia Inc. New Zealand Organisation
for Rare Disorders (NZORD) Pallister-Hall
Foundation (Aust) Parent to Parent (New
Zealand) Poland Syndromei
Support Association Polycystic Kidney
Disease Association Polycystic Ovary Syndromei
Association of Australia Inc. Prader-Willi Syndromei
Assoc. of Australia Retina Australia NSW Rett Syndromei
Association of NSW Inc
Self-Help Organisations
United Together (SHOUT) Short Statured People of
Australia Sjogren Syndromei New
Zealand Smith Magenis Syndromei
Support Group of Australia South African Inherited
Disorders Association (SAIDA) Spinal Muscular Atrophy
Association of Australia Syndromes Without A Name
(SWAN) The Bath Syndromei
Foundation, Inc. The Haemochromatosis
Society of Australia The Lupus Association of
NSW Inc Your Genes, Your Health Thalassaemia Society of
NSW The Centre for Geneticsi
Education
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