Mitochondrial disease Blog
Jacks fund raisingYes we continue to be blown away by the genorisity of everybody supporting Jack in fundraising for Mitochondrial research. We aimed for $10,000 and we are now at $10,840.00. We are now trying to reach a new goal of $20,000.00 Thank you You are incredible - Thank youThank you for all your support. Nana's cake standNana working hard to raise money for Jack fund raising. Permalink -- click for full blog post "Nana's cake stand" Jack PhotosPhoto's of Jack White Permalink -- click for full blog post "Jack Photos" WOW $7690.00 and it's only the 1st of JulyWe are truely blown away by the incredible support in our quest to find and fund a cure to Mitochondrial Disease Team Jack Its Jacks Footy TeamThe Hawk's are playing again tonight and Jack and Elmo have worked up a thirst. They're keen to watch Hawthorn win another hard game. Jack is an honorary member of the Hawks football club and his footy jumper was signed by Shane Crawford and Spider Everett!! Compliments of John Quinn who roped Jack in as a Hawks member whilst still in the pram, recruiting them young. Permalink -- click for full blog post "Its Jacks Footy Team" Mitochondrial Information Day29 June 2010 Dear Friends You, together with your family & friends, are invited to attend the Mitochondrial Information Day on Thursday 29th July 2010 in the auditorium of the Kolling Institute, Royal North Shore Hospital, St Leonards, from 9am – 1pm. Key speakers on the day will be Dr Kimberley Tan, Neuro-Ophthalmologist, Royal North Shore Hospital, “Dispelling the myths: mitochondrial disease & the eye”, together with Professor Carolyn Sue discussing the current state of research into mitochondrial disease. It is only by research that treatments and possible cures will ever be determined for this disease that “robs your energy”. The Australian Mitochondrial Disease Foundation’s (www.amdf.org.au) hard working directors will be able to update you on the progress of the organization, and tell you about this year’s “Stay in Bed Day” on Sunday 22nd August. Your interest, support and/or participation in this event will be welcome and appreciated to assist future research, education and support for those affected by mitochondrial disease. If you are unable to attend “Mito Day” for the info, then please check the website www.stayinbedday.org.au to register as a fundraising hero. Jacks fund raisingJack's off to school today after spending three weeks at home with the flu, getting stronger everyday. Jack and his parents would like to thank everybody for your great support for his stay in bed day. Mitochondrial-disease-cureHelp find a cure to Mitochondrial Disease Permalink -- click for full blog post "Mitochondrial-disease-cure" Cupcakes-brownies-muffins-treatsJacks favourite Cupcakes brownies muffins and treats made by mum and nana Permalink -- click for full blog post "Cupcakes-brownies-muffins-treats" |