MITOCHONDRIAL DISORDERS - The Facts, Fiction and a way forward to find a CUREThere are literally thousands of doctors and research scientists around the globe working
on finding a cure for mitochondrial disease and progress is being made everyday.
To date, treatment options are limited and patients are required to consume a large cocktail of vitamin supplements daily plus any other medications that may be required to treat the presenting symptoms of a mitochondrial disorder. This website is dedicated to parents and
extended family members all around the world who have been told their child or children has a Mitochondrial Disorder.
We started
this website because we couldn't find any information (in layman terms) when doctors told us that our son Jack had a
suspected mitochondrial respiratory chain disorder; and there was no mitochondrial support network in Australia. This site is dedicated to parents in Australia and around the world because we are linked through a common cause to find a cure for this debilitating, degenerative condition. Our dream is to see our son Jack be CURED of this disease and help him to reach his full potential and have every opportunity to lead a rich and fulfilling life.
Our journey started in 2004 and continues 6 years on with our little boy 'Jack' who faces a daily battle to stay healthy and strong. We're still searching for a cure and are hopeful that scientists will find a treatment and cure within Jack's lifetime. We hope this website about Mitochondrial Disorder's provides the information you need and helps you find the answers you seek..
CURE MITOCHONDRIAL DISEASEA Mitochondria one of hundreds within a
cell:
 The White Family 'VISION' To find a cure for Mitochondrial Disease and Save Our Son and our 'MISSION STATEMENT' "At no
other time in history has there been A GREATER OPPORTUNITY to find a
cure, we have the resources to cure this disease, so now is the time to
act, Together
we can do it..."
Jack's Mum and Dad Have you been finding it difficult to find reliable information on Mitochondrial disease in Australia? Be assured you are not alone. There is very little information available leaving us with even more unanswered questions. In this website you will find our personal story about our son Jack, who went from a regular little boy at birth, to just 7 months later, fighting a war with his cells; cells that fail to produce enough energy to enable him to live what is considered a normal life. We were informed by one of Australia's leading Paediatric Specialists in Genetic Disease that (at best) Jack had up to three short years to live - this I refer to earlier as fiction. We have endeavoured to list resources and weblinks that are available and give some idea of what may be a logical process to start finding your own answers. Given that this is a very complex disease and each person afflicted has a different histological background, the presenting symptoms may be different and as a result, treatment will vary and the resulting outcome will vary. This list of resources is not conclusive but rather a work in progress. If after reading through the website and digesting the content and considering the links, you believe some of your own resources and links would help us with our cause, please contact us. We would love to hear from you! Mum's
page: Charmaine
Lists resources and information that are of benefit to mum's and
carer's trying to deal with all of the different aspects of caring for our children 24 hours a day whilst still trying to maintain a normal household.
Mum's Page - Click
here:
Dad's
page: This page is dad's trying to deal with the issues of watching our children struggling with genetic disease and the additional burden this brings
Dad's
Page - Click
here:
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| What is Mitochondria? What is Mitochondria explains how Mitochondria form part of the cell responsible for energy production |
| Mitochondrial-disease-cure Help find a cure to Mitochondrial Disease |
| Mitochondrial disease Blog This blog details recent news in Jacks mitochondrial disease research, treatment, mitochondrial medication, and mitochonria specialists around Australia & the world searching for a cure. |
| Mitochondria Books Easy to read parent friendly books on Mitochondria and medical references |
| mitochondrial ebooks mitochondrial ebooks - information resources that we found useful |
| Mum's Page Mums Pages |
| Dads page Dads page information on mitochonria and the road ahead, planning tools and some considerations for the future |
| Donate Donate to improve the lives of children |
| Early Intervention Programs Early intervention programs can improve your childs chance at a normal life |
| Cupcakes-brownies-muffins-treats Jacks favourite Cupcakes brownies muffins and treats made by mum and nana |
| Website Links website links lists mitochondrial websites that we have found useful |
| Contact Us To contact the team at Mitochondrial disorder information |
| Team Jack Jack White, important people in Jacks life |
| Jack Photos Photo's of Jack White |
| Jacks Outback Adventures Visit Jacks outback Australian disabled adventures, we try to provide Jack with as many holiday and adventure opportunities as possible |
Support Aussie Research for a Cure
Outback Jack
Fishing on the Blackwood
Camping with Kookaburra's
Treetop Walk W.A
Fishing with Jack